Alex is one of the founders of Spotlight YOPD, a charity that focuses on people with young onset Parkinson’s disease. Many people who diagnosed under the age of 40 have their careers and life ahead of them. Their plans and aspirations are in the blink of a moment wiped out by a devastating diagnosis. There is no support. There is no information as to where one should go. How can these people help themselves not only to come to terms with what they have but also find information to help them live and deal with perpetual change and the impact that Parkinson’s will have on their lives.
Spotlight YOPD aims to be a friend you can rely on at a time in your life when you need it most. To give the newly diagnosed person with young onset Parkinson’s the information, links to support in their area and crucially inspire hope and positivity by realising that they are not alone.
Spotlight YOPD is registered in the United Kingdom with charity number: 1165177